Metaplastic Breast Cancer

Metaplastic Breast Cancer Survivor! 8 Year Metaplastic Breast Cancer Survivour!

Metaplastic Breast Cancer (MBC or MpBC) is a rare form of cancer.  When I was diagnosed on October 9th 2009 I thought I was dead.  My life was over and metaplastic cancer would kill me.  I started searching on the Internet and found girls with this cancer.  I contacted them and several had died.  I was devasted and I thought Metaplastic BC was going to kill me.  So in 2010, I started a Facebook Group it was called MetaplasticBC.  Then after that, I launched a public group Metaplastic Breast Cancer on Facebook and also a Remembering the girls who died from Metaplastic Breast Cancer.  I thought that if I died, I would help as many girls as I could whilst alive.  I would provide support and as much information as possible for anyone who needed and wanted it.  I have had a wonderful team of admins including Judy, Cari, Jennifer, Deanna, Kim, Jacomi who have been strong advocates of #metaplastic. 

Well 8 years later, I am still here.  I am still alive and I am so grateful that I am alive!  Metaplastic Breast Cancer is rare, but more and more of us girls are alive and living.  This is important and essential.  I want to thank everyone currently on our Facebook Group, sister groups and pages or anyone with Metaplastic Breast Cancer.  There is hope for all of us and these 8 years have been tough - but worth it.  My cancer friends really are my cancer sisters.  

Cyberknife Treatment for cancer

Last week my friend Alexandra was over.  She came to Germany to Frankfurt for Cyberknife treatment.  Unlike chemo, Cyberknife has about a 90% success rate.  It is also fast and does not give anyone huge side effects. 

Cyberknife is radiation treatment - better known as Radio surgery.  The robot delivers radiation to specific areas often very small sections about 3-4mm.  It is non-invasive.  

In my opinion it is the real way to treat any metastatic cancer in the lungs or brain. 

Here are a few pictures. 

Above is the machine.  That is used for the procedure. 

Below is Alexandra strapped to the bed before the treatment. 

This last image is of the mask that you must wear during Cyberknife.

 

Just to show everyone how wonderful this is this a picture of Alexandra 2 days after treatment.  Her treatment lasted 1.5 hours and there were no side effects. 

Metaplastic Breast Cancer and how to survive it

Metaplastic breast cancer and how to survive it. This simple straightforward presentation is for anyone with metaplastic breast cancer. Or anyone that knows anyone with metaplastic breast cancer.  Please read it and share or like. 

The more reach we get the more lives we can save X

 

Bald really can be beautiful- pictures of our metaplastic breast cancer girls

Praise the bald head!! We asked several metaplastic breast cancer girls if they would please send us their hair loss journey. We are amazed at how many girls did! I know I am one in million and my hair never came back. In fact, 5 girls I know had the same problem. But it doesn't matter any more. I (we) am (are) alive and well. Please click the hair journey links below and share.

ON my wedding day 7.9.00    Chemotherapy 12.2.10 (at least I still have my eyebrows)

 

Our Metaplastic Breast Cancer website is just growing and growing.  Not only do we have close to 600 members on our Facebook group the number of girls surviving this disease is growing and growing.

Cari our web guru has been working with the girls to show positive images of women with cancer and how bald is beautiful.  Please take a look!  The most important links are

http://www.metaplasticbreastcancer.net/cont-Hair-Loss.html

 

Case Study: Do you need chemotherapy to fight metaplastic breast cancer?

Do you need chemotherapy to fight metaplastic breast cancer? This is a case study of a 70 year old woman with a tumour on her right breast and her decision to have radiation therapy only.

Bristol-Myers Squibb NCT01928394 Can you Help Patricia?

Bristol Myers Squibb sponsors a study A Phase 1/2, Open-label Study of Nivolumab Monotherapy or Nivolumab Combined With Ipilimumab in Subjects With Advanced or Metastatic Solid Tumors

Can you help Patricia?

She is a 60 year old cancer patient currently at MDA.  Here is a little bit about her:

Foundation One Study on Metaplastic Breast Cancer

Foundation One has written an excellent study on Metaplastic Breast Caner and Genomic Profiling.

The exact title is a bit of a mouthful but here goes:  Comprehensive Genomic Profiling of Metaplastic Breast Carcinoma By Next Generation Sequencing Reveals Frequent Actionable Genomic Abnormalities and New Routes to Targeted Therapies

Vector Gene Therapy experts?

Vector Gene Therapy?

Are you an expert  - does anyone know someone who can direct us?  One of our girls in the Facebook Metaplastic Breast Cancer Group  needs some help.

 

Please contact me if you can!

 

 

 

Common side effects of chemotherapy on the body

I just got a link to this article 19 common side effects to chemotherapy.  

The info graphic which I cut and paste a bit of here, is marvellous.  But there is one thing I don't like.

Platinum Chemo Drugs - Carbo vs Cis?

Oh my!  One of my wonderful admins on our Facebook page sent me this fabulous powerpoint.  It is about Cancer survival in the US based on type of cancer - breast, lung etc.